My partner is halfway through the 6 months of chemo but the excess fluid will not piss off! She woke up and did some exercises to try to get some post chemo bowels going again and was so tired that she had a seziure. I called the ambos quick sticks and we got her some medication. At emergency she recovered more quickly than 2 3/4 months ago thanks to the quicker response. I was glad that this had not occurred a day later on the same night of the grand final. Being stuck in emergency at such a time would be very unlucky indeed. Fortunately it was quite that morning. Still it took from 8:00 am to 6:00 pm for us to get to the oncology ward. I think it is the atmosphere of emergency that gets you the most. Its all hype. You don't seem to see many older staff there. Is it the agility of mind, the naivity or learning the ropes that keeps them there!? All I know is that they do a fantastic job for all manner of clientelle, that is for sure.
We only just got to see my partners oncologist as we just got to the ward at 5:55 or so. I was watching the time and spurred on by my partner kept on harassing the nurse that was in charge to go to the ward. We were admitted to the oncology ward in mid afternoon but it took the best part of 3 hours for the communication between the hand and mouth to work. Emergency was getting busier and busier and humming up for a torrid Friday Nort. Patients were being found other beds outside of emergency hither and thither.
My partner was completely exhausted by not only the sezuire but all that was going on as well. Needless to say she had a good nights sleep.
I got home but did not feel like hitting the hay at a reasonable time. I think it must be the build up of adrenalin. I used to find it hard going to bed after playing sax in bands in pubs. It took a while for the adrenalin to wear off. This seemed like the same.
On Saturday we watched the Grand Final. She was recovering well. The dex meth went up and she had an aspiration in the afternoon. Unlike the weekly aspirations she has had, this was much more formal with gowns and so forth. They took of 15ml of fluid and she felt much better with her hand and speech improving almost immeadiately afterwards. I called a few of her mates to keep them up-to-date, got her some fresh clothes. I went home and the same thing happened in the night. Promised going to bed early and didn't!
Today a good bevvy of friends visited. This lifted her spirits. Her oncologist is waiting to query the radiologists to find out the status of the cancer. She could not get to see the results on Friday. It looks as if my partner will be in until at least tomorrow.
Sometimes she wants to chuck it all in and stop taking the tablets. Today, talking to the doctors she said she wanted to. I keep convincing her that she should give things a bit more time. If we can get her to a stage of managing the fluid and it eventually subsiding her quality of life may improve that she may get to feel more positive about her situation. If she can build up a tolerance to the dex meth we may be in a better position.
I get worried about her being at home and another sezuire occurring with no one around and her not being able to press the button to call the red cross.
Thats enough for now.
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hello Steve, partner and son of sunshine
ReplyDeleteI really appreciate being able to catch up on how you all are, especailly her good self, but very much you and your son as well. I appreciate knowing without having to ask. Thanks for letting me into your lives like this. I imagine other followers feel the same. Sorry I wasn't able to follow through with the promised - and much much wanted - vist to you last week. I just could not budge the work commitment. But there is better coming. I have applied to drop back to a 0.8 work pattern and I hope that will happen soon and free me up. It will be a few free afternoons; I will be most 'available' on Wednesdays and Thursdays. How would a short visit be, somewhere between 2 and 4pm? I read what you said about your fear of her not being able to get to the help button if she needed it. That spurred me on. When this reduced hours thing kicks in, and it should not be far away, you could roster me on those days every week,if that's what your partner would like. See how things go, eh? Love to you all. FM
btw let me know if she'd like a hospital visit. xx
ReplyDeleteHi Steve I am crying but now i am thinking how can I help. I am on Holidays as of 17th Dec. Could I be of use if I flew over for a week then? Could just keep house for you guys??
ReplyDeleteLet me know your thoughts.
Love Shari