Freaky Friday, Stalemate Saturday, Sunday Again.

My partner is halfway through the 6 months of chemo but the excess fluid will not piss off! She woke up and did some exercises to try to get some post chemo bowels going again and was so tired that she had a seziure. I called the ambos quick sticks and we got her some medication. At emergency she recovered more quickly than 2 3/4 months ago thanks to the quicker response. I was glad that this had not occurred a day later on the same night of the grand final. Being stuck in emergency at such a time would be very unlucky indeed. Fortunately it was quite that morning. Still it took from 8:00 am to 6:00 pm for us to get to the oncology ward. I think it is the atmosphere of emergency that gets you the most. Its all hype. You don't seem to see many older staff there. Is it the agility of mind, the naivity or learning the ropes that keeps them there!? All I know is that they do a fantastic job for all manner of clientelle, that is for sure.

We only just got to see my partners oncologist as we just got to the ward at 5:55 or so. I was watching the time and spurred on by my partner kept on harassing the nurse that was in charge to go to the ward. We were admitted to the oncology ward in mid afternoon but it took the best part of 3 hours for the communication between the hand and mouth to work. Emergency was getting busier and busier and humming up for a torrid Friday Nort. Patients were being found other beds outside of emergency hither and thither.

My partner was completely exhausted by not only the sezuire but all that was going on as well. Needless to say she had a good nights sleep.

I got home but did not feel like hitting the hay at a reasonable time. I think it must be the build up of adrenalin. I used to find it hard going to bed after playing sax in bands in pubs. It took a while for the adrenalin to wear off. This seemed like the same.

On Saturday we watched the Grand Final. She was recovering well. The dex meth went up and she had an aspiration in the afternoon. Unlike the weekly aspirations she has had, this was much more formal with gowns and so forth. They took of 15ml of fluid and she felt much better with her hand and speech improving almost immeadiately afterwards. I called a few of her mates to keep them up-to-date, got her some fresh clothes. I went home and the same thing happened in the night. Promised going to bed early and didn't!

Today a good bevvy of friends visited. This lifted her spirits. Her oncologist is waiting to query the radiologists to find out the status of the cancer. She could not get to see the results on Friday. It looks as if my partner will be in until at least tomorrow.

Sometimes she wants to chuck it all in and stop taking the tablets. Today, talking to the doctors she said she wanted to. I keep convincing her that she should give things a bit more time. If we can get her to a stage of managing the fluid and it eventually subsiding her quality of life may improve that she may get to feel more positive about her situation. If she can build up a tolerance to the dex meth we may be in a better position.

I get worried about her being at home and another sezuire occurring with no one around and her not being able to press the button to call the red cross.

Thats enough for now.

Chemo Meemo

Things are getting fairly stable around these parts again. Touch wood! My son is back to school today after being a bit wary of going back after what has happened. His friend who was driving and has the accident can't yet cope with the idea of going back to school, poor lad.

My partner is a bit better about chemo and seems to be managing it better than the last time. We had a great long chat to another oncologist today which brought out a few realisations. One of them was that my partner has been on a treatment programme since the time that her tumour was removed. She had not realised that this was the case and thought that the programme she was on now was related to the operation to put in the shunt. She did not realise that all had been organised from ground zero.

It is getting warmer here and spring is starting to happen. My partner does things around the house, goes for walks and has helped with meals here and there. She gets hung up about not being able to cook. I commented to her tonight, "Geez some real blokes nevers learneds tooz cooks so don't chuz worry abouts cookins yerselveses luvs!"

She gets about with friends and family during the day and is slowly getting used to the scope of what she is now capable of. Things that she once did and once had the capability of but now can't or no longer are needed seem to be fading into the past slowly. Maybe the ache of having lost those things from her life will fade too.

Improvements during Sad Times

My partner has been doing really well this week. She has been much more stable and her spirits have been much higher and she has been able to do a few more things and feel more competent. She still needs more Dex towards the end of weeks between aspirations. So good improvements there.

But a very sad thing has happened to my son last week. I can't believe the fate that we are having to endure at the moment. It has simply been unreal.

My son went down to stay at our land at Roaring Beach last week with a group of friends for a holiday surfing trip with happy times around the campsite. My partner and I had gone to stay with friends together for the first time in five months. We had a great afternoon with beautiful weather.

Around 5-6pm I got a call from a friend that a girl had died in a car accident on Roaring Beach Road. She was one of the friends that had been camping with my son. Since this happened my son and the young friends that went camping together have been staying with each other at each others places and keeping company since last Tuesday. The funeral was today. It has been a shock to us all and our hearts go out to her family.